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RARE DISEASE POLICY

30th May, 2023

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Context

  • The Delhi High Court has set up a five-member panel to implement the Centre’s rare diseases policy in an efficient manner and ensure that its benefits reach patients.

NATIONAL POLICY FOR RARE DISEASES 2021: https://www.iasgyan.in/daily-current-affairs/national-policy-for-rare-diseases-2021-7#:~:text=Provision%20for%20financial%20support%20of,Scheme%20of%20Rashtriya%20Arogaya%20Nidhi

PRACTICE QUESTION

Q. What is Rare disease? Write down the provisions of National Policy for Rare Diseases (NPRD), 2021 in detail.

https://www.thehindu.com/news/national/delhi-high-court-steps-in-for-patients-of-rare-diseases-sets-up-panel-to-implement-centres-policy/article66904779.ece